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this post was submitted on 10 Jun 2024
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Asklemmy
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I thought I had Steven Johnson syndrome
When I was a kid I got these weird flaps of what felt like dead skin inside my mouth on both of my cheeks, and when I tore them off my entire mouth and my lips got inflamed. I couldn't eat and had to be hospitalized for like 2 weeks. They told me they had no idea what it was but it might be Steven Johnson's syndrome. It kept coming back periodically, too, but each time it'd be way less severe and now I don't get it at all.
Was that anything like your experience? Just out of curiosity.
Yikes yeah that does kind of sound like it. I'm sorry you had to experience that. It's a shitty disease.
I developed a pretty bad ulcer on the inside of my cheek. It was super inflamed and my upper teeth rubbed it whenever they moved, causing quite a bit of discomfort. In retrospect it was probably just a bad apthuous ulcer (canker sore) but it didn't have the typical look of one, nor do I typically get them.
The kicker was that I was taking a course of Meloxicam, which is an anti inflammatory medication which is very much linked to SJS, so I panicked.
I work in critical care and have seen a lot of bad SJS/TEN (toxic epidermal necrolysis) cases and my mind immediately jumped to those. I've seen every inch of skin fall off of people.
Medical people are the worst hypochondriacs lol.